Survivor Stories

As a community, we share our stories for many reasons: to help reassure others, to spread awareness, to cope. I believe our stories make us stronger and allow us to take back a certain level of control previously lost in the confines of illness.

Erica Snyder

Anti NMDA Receptor Encephalitis: How I Learned to Love the Name

I used to HATE the words Anti-NMDA Receptor Encephalitis (ANMDAre)! The name, similar to the disease it represents, is complicated and mysterious. It offers no insight to what the disease entails, unless you are a physician and, even then, you may not have ever heard of this illness, only recently identified in 2007, by Dr. J. Dalmau.

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Kimberly, Age 27 (Ohio)

My story starts in late 2011, in the fall. I was a 27-year old mom of one, married for 2 years and by most standards living a "normal life". I started noticing red patches that would creep up my chest, neck and face. It would be on one side of my chest and came on...

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We shall draw from the heart of suffering itself the means of inspiration and survival. [Winston Churchill]

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